Pasientopplevelser og kronik sykdom - en fenomenologisk studie av leddgiktpasienters livssituasjon
Engelsk titel: Patients experiences and chronic disease - a phenomenologic study and the life situation of patients with rheumatoid arthritis
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Författare:
Thygesen E
Språk: Nor
Antal referenser: 35
Dokumenttyp:
Artikel
UI-nummer: 01049914
Sammanfattning
There are often big differences
between the patients and the
healthcare workers view of
what happen to the body when we
get chronically ill. By listening to
the patients needs,
it may be possible to reduce the
gap between these two different
views of reality.
The purpose of this study was to
gain increased knowledge of how
it is to live with a
chronic disease like rheumatoid
arthritis, and what consequences
it has for activities of daily living
- and the need for health care.
The main aim of the study was to
enhance the patients own experience.
Based on a phenomenological
philosophy and method, six patients
with server rheumatoid
arthritis where interviewed. The
analysis of the material was
based on Giorgi (13), who has
developed a method of analysis
inspired by Husserl and MerlauPonty,
who are central philosophers
within the phenomenological
tradition.
The respondents tells that having
a disease like rheumatoid arthritis
leads to changes in the body.
These changes gives limits to
their lives. They do not regard
these limitations as isolated phenomena,
but are concerned about
the consequences they have for
the person itself, and the people
close to them.
The respondents often expressed
that their meeting with the
healthcare-service made them
feel incapable. In their view the
healthcare-service has had a
paternalistic attitude dominated
by lack of information and
empathy. In this study I have
argued that the paternalistic attitude
should be replaced by a
"softer" maternalistic attitude.
This will enable the patient to be
included in their treatment to a
greater extent, thus increasing the
possibility for better control of
their own lives and illness.