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The aim of this study was to investigate (i) whether specific aspects of the initial consultation (IC) and/or patients’ satisfaction with doctors’ care are related to health-related quality of life (HRQoL), anxiety and depression among patients with carcinoid tumours and (ii) whether patients’ satisfaction with doctors’ care changes over time. The study has a longitudinal design. The HRQoL and psychosocial function among patients who met the doctors showing good ability to identify patients’ worry and wish for information were compared with those patients who met doctors showing less good ability. Patients’ HRQoL, anxiety, depression and satisfaction with doctors’ care were assessed longitudinally, shortly after each of the first four admissions to specialist care. Patients who met doctors showing good ability to identify their wish for information at the IC reported higher levels of cognitive function. Higher satisfaction with doctors’ care was related to higher emotional and cognitive function, to higher global QoL, and to lower levels of problems with diarrhoea, financial difficulties, constipation, anxiety and depression shortly after each of the first three admissions, although not after the fourth admission to the specialist care. Although most patients with carcinoid tumours report high satisfaction with care, it is important to be aware of the fact that some patients may be less satisfied. Doctors should provide patients with information which matches the individual patients’ needs and preferences as patients’ satisfaction with doctors’ provision of information is related to patients’ HRQoL, anxiety and depression. Published by arrangement with John Wiley & Sons.

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