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Sammanfattning

PURPOSE: This qualitative study sought to illustrate factors that may affect patient participation in a Norwegian acquired brain injury rehabilitation context. METHOD: Data were collected through retrospective in-depth interviews with five patients and through focus-group interviews with ten health professionals. FINDINGS: Five indicators for patient participation were identified from the empiric material: Professional human resources (how multidisciplinary team members’ different roles affect patient participation), community (how formal and informal arenas either may facilitate or inhibit participation), comprehension (the way professionals are able to meet and understand the patients’ situation), predictability (based on sufficient information) and flexibility (differentiated approaches to meet the patients’ abilities and desire to participate). CONCLUSIONS: The results indicate relational conditions as a foundation for patient participation. It highlights how informal arenas contribute to relation building between the parties. One characteristic of patient participation within rehabilitation following acquired brain injury is the degree of participation changing over time. The study demonstrates individual preferences - meaning professionals have to adjust to each person. From the patients’ point of view, participation is about having control by getting information, being listened to, and having influence.

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