Patienters og pårörendes oplevelser af aktiv deltagelse under indlaeggelse for kronisk obstruktiv
lungesygdom
Sammanfattning
Abstract
Background. Engaging patients and family members in healthcare is a central intention of health
policy in many countries. Hospitalized
patients with severe chronic obstructive pulmonary disease (COPD) may be particularly challenged to
participate actively in their own care.
A better understanding of participating in care based on experiences of both patients and family
members is needed in order to improve
supportive care.
Aim. To investigate experiences of patients with severe COPD and their family members of
possibilities in participating in care during
hospitalization.
Methods. Three hospitalized patients with severe COPD and one family member were interviewed,
and a phenomenological hermeneutical
method was used to interpret the transcribed texts.
Findings. Findings included one main theme consisting of three subthemes. The main theme,
"Getting ready," implies that participating
includes efforts to prepare for discharge. The subthemes encompass the struggle to deal with
contradictory challenges in "handling needs of
help and support," "handling needs of information," and "handling needs of influence."
Conclusion. The complex process of participating in care of hospitalized COPD-patients is managed
in processes of transitions according to
personal coping and given supportive care. In order to improve supportive care healthcare
professionals need to pay greater attention of
engaging family members.