Ungdom med cerebral parese og deres kontakt med fastlege og habiliteringstjeneste
Sammanfattning
BACKGROUND Cerebral palsy (CP) often entails a need for health and social services throughout life. Upon scrutiny, it has been found
that the transition from services for children and adolescents to services for adults is particularly challenging. The study investigates
contact between adolescents with CP and their GPs/habilitative services up to and after the age of 18 years, and the percentage who have
an individual habilitation plan (IHP).
MATERIAL AND METHOD An attempt was made to identify all those with CP born in 1992 and 1993 and resident in southeast Norway.
Seventy-four patients were included (time point I, interview and clinical examination). Forty-two (57 %) responded at the follow-up
examination (time point II, questionnaire).
RESULTS At time point I, 35 (47 %) of the adolescents had consulted their GP in the past year, 49 (66 %) had been in contact with the
habilitative services, and 42 (57 %) had an IHP. Twenty-eight (38 %) used mobility aids. Use of mobility aids gave lower odds of consultation
with the GP. Longer distances from home to the habilitative services gave lower odds of contact with both the GP and the habilitative
services. Five adolescents with mobility aids did not have an IHP. At time point II, the percentage who had consulted their GP had increased
somewhat, the percentage who had been in contact with the habilitative services had reduced, and the percentage who had an IHP was
unchanged.
INTERPRETATION The findings reinforce the assumption that the health services provided to disabled adolescents are less locally based
and less well coordinated than is supposed, and that there may be geographical differences in the service offered.