Sammanfattning
The study explores care for dying children, their parents and family in NICU and PICU. This care
is dimly described in the scientific literature. The purpose of the study was to explore the
phenomenon, how nurses in NICU and PICU experience end-of-life care to child, parents and family,
after the decision of treatment completion has been taken, and the child dies. This study includes ten
empirical articles from the time period of 1997-2010. These articles were selected based on a
systematic search in the databases: PubMed, CINAHL, Scopus, PsycINFO and Swemed +. Max van
Manen’s four existentials: Lived space, Lived body, Lived time and Lived human relation formed the
four research questions which were used as a method to identify findings. 'Balancing with uncertainty
as companion' emerged as the essential meaning of the phenomenon and lack of human life
discourse seams significant in relation to the perceived uncertainty.