Engelsk titel: Genetic counseling - risks, liability and individual autonomy
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Författare:
Tunlid, Anna
Email: anna.tunlid@kultur.lu.se
Språk: Swe
Antal referenser: 33
Dokumenttyp:
Artikel
UI-nummer: 16083094
Sammanfattning
Genetic counseling was established within the Swedish healthcare system
in the 1960s and 1970s. During this period the idea of individual autonomy,
which had been introduced into genetic counseling already in the 1950s, was
gradually strengthened. The paper discusses the development of medical
knowledge and technologies related to heredity during this period, from empirical
risk calculations to the introduction of amniocentesis and chromosomal
analysis, and how this development posed new choices to the individual. It is
argued that although the ideal of individual autonomy was invariably stressed,
the counselors’ attitudes and more general norms and values about genetic
diseases and disability also influenced the individual decisions