Family caregivers experiences of formal care when caring for persons with dementia through the
process of the disease
Sammanfattning
Background: Family caregivers' experiences of formal care when caring for persons with
dementia through the process of the disease is sparsely investigated.
Aims:To investigate family caregivers' experiences of formal care when caring for a person with
dementia, through the stages of the disease.
Design: A qualitative approach with focus group interviews.
Methods: Four focus group interviews were conducted in October 2011 with 23 spouses and adult
children of persons with dementia and analysed with content analysis.
Results: The participants' experiences of formal care when caring for a person with dementia were
captured in the theme ‘Family caregiving requires collaboration with formal care to get support
adjusted to needs specific to the stages of dementia’. This can be broken down into the categories
‘The dementia diagnosis - entry into formal care as a novice family caregiver’, ‘Needing expanded
collaboration with formal care to continue care at home’ and ‘Being dependent on a nursing home and
trying to maintain involvement’.
Conclusion: Family caregiving requires collaboration with formal care to get support adjusted to the
individual's needs, specific to the stages of dementia. Caregivers experience a transition process
with three main turning points: the dementia diagnosis; when they realise increased need for formal
care to continue caring at home; and when the person with dementia is moved into a nursing home.
The interviewed caregivers experience formal care reactive to their needs and this often promoted
unhealthy transitions. Formal care needs to be proactive and deliver available care and support early
on in the dementia trajectory. Interventions should focus on facilitating a healthy transition for family
caregivers through the trajectory of the dementia disease to ensure their well-being. Published by
arrangement with John Wiley & Sons.