Being visible: PhotoVoice as assessment for children in a school-based psychiatric setting
Sammanfattning
Background: Recovery-oriented mental health services empower all clients, including youth and
their families, to be actively involved in directing their own care. In order to develop persondriven
interventions, clinicians must understand what matters from their perspective. Thus,
recovery-oriented assessments need self-report measures that adequately capture the domains
and content that matter to a range of particular persons.
Aim: This study examined if and how PhotoVoice, a participatory research method used to
empower and highlight the unique experiences of vulnerable groups, could be used as a recovery-oriented
self-report measure for children with a mental health disorder.
Methods: We used PhotoVoice to engage four children with mental health related disorders at
a day hospital program for severe behavioural disorders. The children, as co-researchers in this
participatory approach, created life books from photographs and images of what mattered to
them across nine sessions. To examine the PhotoVoice process, we used ethnographic methods,
including child interviews and participant observations in their classes and at recess before, during
and after the weekly sessions. Our overarching narrative-phenomenological theoretical
framework focused data collection and analysis on what mattered most to the children.
Results: The PhotoVoice method engaged and empowered the children in articulating what
mattered in their everyday lives from their perspective that resulted in a novel, child-generated
domain of ‘mattering to others’ for future self-report measures, and facilitated changes that generalized
outside of the group. We illustrate these results by drawing a particularly illustrative
case example from the study.
Conclusion: The PhotoVoice method foregrounded children’s perspectives on what matters
more explicitly than clinical or parent perspective on function.
Significance: The participatory philosophy and methods of PhotoVoice provides a viable
approach to recovery-oriented self-report measures as well as an occupation-based assessment
and intervention.