Ungdom med barneleddgikts hverdagslivserfaringer: Forhandlinger om deltakelse og normalitet
Engelsk titel: Everyday experiences of adolescents with juvenile idiopathic arthritis: Negotiations on participation and normality
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Författare:
Styczen, Line Myrdal
;
Dahl-Michelsen, Tone
Email: linmyrd@ous-hf.no
Språk: Nor
Antal referenser: 32
Dokumenttyp:
Artikel
UI-nummer: 18030057
Sammanfattning
Juvenile Idiopathic Arthritis (JIA) is one of the most common
chronic illnesses in childhood. Typical symptoms are swelling, pain, and
stiffness in joints, which can result in challenges in completing daily
activities and participating in everyday life. The aim of this article is
to provide knowledge regarding how adolescents with JIA experience
their own daily life. Eight adolescents, aged 12-16, with JIA participated
in this qualitative study. The data collection was conducted using
in-depth interviews inspired by life mode interviews. The study design
is explorative and the concepts of participation and normality form a
focal point in the analyses. We find that home, school, leisure pursuits,
clinic appointments, and rehabilitation in a warm climate appear
to be important arenas in the adolescents’ everyday lives. The results
demonstrate that generally their everyday experiences concern negotiations
of participation and normality in relation to themselves and
their peers, such as friends, schoolmates and other adolescents with
JIA, and in relation to the environments. The adolescents’ negotiations
of participation involve both experiences of being emancipated and
constrained. Indeed, the results unfold how participation intersect with
norms of normality within the different arenas of everyday life among
the adolescents with JIA.