Engelsk titel: The informative medicine and responsibility for the digital patient's integrity
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Författare:
Eklöf, Motzi
;
Normark, Daniel
Email: daniel.normark@ekhist.uu.se
Språk: Swe
Antal referenser: 38
Dokumenttyp:
Artikel
UI-nummer: 18100016
Sammanfattning
Computers and advanced information systems are an essential, ubiquitous
part of medicine and public health. Biomedical big data play a crucial role at
both hospitals and laboratories, to the extent that we can talk about a new
form of medicine - informatics medicine - with its own practices of knowledge
and development. Through these systems patient records can be utilized to
improve our understanding of the normal and pathological body. But while
informatics medicine thus builds knowledge through technologies of trust
it simultaneously undermines the patient-doctor trust, created through the
traditions of upholding ethical standards of confidentiality. The increasing
importance of this new kind of medicine is particularly important in the
shifting prioritization of medical ethics – between confidentiality and optimal
candour and transparency. These modes of ideals, based on different forms
of medicine and historical ontological origins, will unequivocally clash,
leaving us to decide whom and what to trust.