Engelsk titel: Experiences of parenthood among women and men with cystic fibrosis
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Författare:
Erwander I
;
Hallström I
Email: Inger.Erwander@skane.se
Språk: Swe
Antal referenser: 20
Dokumenttyp:
Artikel
UI-nummer: 02103735
Sammanfattning
Today most patients with CF
reach adulthood and consequently
marry and have children.
Health care systems are lacking
in knowledge of how these adults
cope with the strain of having
children.
Eight patients were interviewed
about their experiences of having
children. The study was a qualitative
descriptive study and the
patients were interviewed with
open questions regarding their
experiences of parenthood.
The analysis showed that most of
them found it natural to become a
parent. Despite their chronic disease
they had, on the whole, a
healthy self-concept. Many of
them experienced a strengthening
of their relationship with their
partner notwithstanding the
strain many of them experience
when becoming pregnant and
then adapting to life with a new
baby and its needs. Partners took
greater responsibility upon
themselves in caring for the children.
Most of the CF parents and partners
expressed the need for organised
daily structuring and planning
in order to cope with parenthood
and the routines of living
with CF and its treatment. In
spite of everything the parents felt
that the children gave a special
meaning to life and that this was
something worth fighting and
living for.