Föräldrars upplevda erfarenheter av att tillfrågas om medverkan i forskning för sitt prematura
barns räkning
Engelsk titel: Parental experiences of being asked to participate in clinical research on behalf of their premature
infants
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Författare:
Andersson AC
;
Kristensson Hallström I
Email: andersson.ann-christine@lsn.se
Språk: Swe
Antal referenser: 20
Dokumenttyp:
Artikel
UI-nummer: 05093267
Sammanfattning
Clinical research, when children
involved, may cause difficult ethical
problems for both caregivers
and parents. Informed consent
has to be obtained from the
parents and from the child depending
on age and maturity. The
concept of informed consent is
complicated and depending on
the ability of communication between
the professionals and the
parents. The aim of the study was
to illuminate parents lived experiences
when being asked to volunteer
their new-born premature
child to a clinical research study.
Parents of fifteen children were
interviewed concerning their
experiences and a phenomenological
based analysis was carried
out. Three themes were found:
experience of exposure, experience
of insufficiency and experience
of possibilities. The parents
expired themselves being in a
state of shock and their statements
were characterised by the
existing chaos. Despite this, the
parents experienced that they
could do something good for
others in the future. Researchers
have to be aware of the parents’
exposure, and attentive to their
individual needs.