Striving for a life worth living: stroke survivors' experiences of home rehabilitation
Sammanfattning
Background
For mild-to-moderate stroke survivors, early supported discharge from hospital, followed by home
rehabilitation is preferred over conventional care. How this mode of service contributes to recovery
from stroke survivors' perspective needs further investigation.
Aim
The aim of this study was to explore mild-to-moderate stroke survivors' experiences with home
rehabilitation after early supported discharge from hospital.
Methods
A qualitative interpretive interview design was used in the context of a randomised controlled trial. A
purposive sample of eight participants (45-80 years) was followed by an ambulant team, and a
specific healthcare team provided home rehabilitation. Data were analysed using interpretive
description, systematic text condensation and coping theory.
Findings
A crucial determinant for the participants' hopes for a life worth living was the mutual confidence
expressed in encounters with healthcare professionals and the participants' ability to make sense of
their now-altered body. The professional caretakers' communication qualities and their ability to
attend to individual needs were important. Help in processing the emotional reactions caused by a
changed body and in socialising was requested by participants. Professional caretakers providing
home rehabilitation should strive for a more flexible- and individually tailored service and should
seek increased cooperation among stakeholders.
Conclusion
The focus on therapeutic communicative qualities, bodily changes, emotional processes, social
concerns and long-term follow-up should be increased in order to achieve a more beneficial
experience for stroke survivors.